Tuesday, September 04, 2007

On Haircuts, Parental Rights, and Developmental Delays

Yes, I know. I have not posted in ages. I apologize profusely. I have written a billion blog posts in my head, but when it comes to finding the time and energy to type them and post them, I just can't seem to get it done. I will be posting more often, as Hoss and Little Joe both start school programs soon (Hoss 2 full days a week; Little Joe one half day a week) and I have enrolled them in a local daycare/preschool for two days a week for socialization and to allow me to get some work done on our home business (I feel tremendous guilt about this, so I really do not need any snotty comments about how awful daycare is etc. please, have mercy on me. I am doing the best that I can).

The boys did get their haircut on Friday. It made a huge difference in their appearance- especially in Hoss, as the haircut we chose makes the back of his head look a little rounder. Due to concerns on some blog readers part about cultural reasons for not cutting hair, I checked again with all social worker's involved (including tribal) and was reassured that mom's reason for not cutting their hair was not cultural but a control issue. Mom's affective ties to her native american community are minimal and she, herself, does not even claim her identity as native american save for those instances where having a tribal membership card is benificial to her- medical care, dental care, etc. That being said, I made sure to not drastically alter the boys hairsytle or length- I simply had the hair dresser give Little Joe a "little boy" cut (and does he ever look CUTE) and Hoss a classic bowl cut (also very darn cute, and, again has the bonus of giving his head a rounder look in the back).

Little Joe and I had a four hour ordeal last week at the hospital's speciality FAS screening clinic. We were both exhausted (it cut directly into his nap time) by the time we were done.At one point he looked at the speech therapist, said "BYE", opened the exam room door, and left! Was very very funny! I am happy to report that the team at the clinic do not believe that Little Joe has FAS or FAE. He is, of course, developmentally delayed, particularily in language. They gave him a tentative diagnosis of "Pervasive Developmental Delay Not Otherwise Specified" (PDD-NOS). He does exhibit some autistic like behaviors, but no one can tell at this point if they are due to the neglect or abuse (children in orphanages display similiar behaviors) or if they have other origins. The plan at this point is to give him speech and occupational therapy and see what happens. There is a strong sense of optimism that the progress he has made while in our home will continue.

Two days after Little Joe's FAS clinic, Hoss and I trotted off to the hospital for a four and a half hour long developmental screening clinic. Hoss was such a great little trooper- he willingly went along with all of the tests and greeted everyone with a smile and "Hi!" When Hoss was originally seen by the doctor (about a month or two before Hoss came to live with us) who runs the clinic it was strongly suggested that Hoss was austitic and also possibly MR (mentally retarded). Well, our little man blew everyone away with the progess he has made- the consensus is that he is not autistic and it is highly unlikely that he is MR. We left that clinic without a diagnosis other than "developmental delays", recomendations for speech, OT, and PT, and a general "let's see what this kid can do" with therapy, stability, and time. Hoss does have extremely low muscle tone and "ligamentatous laxity" (in other words, his ligaments are "loose") and this accounts for a lot of the issues that affect his ability to walk, talk, run, use eating utensils, etc. The lack of eye contact at times is also related to this issue: the PT and OT explained to me that he isn't ignoring or avoiding eye contact so much as he has no clue where his body is in space and is constantly looking around to get a sense of where he is and maintain his balance. Also, his constant "limp noodle" routine when I, or anyone, tries to move him physically is not so much intentional/behavioral but related to this utter inability to sense where he is in space and maintain his balance- he is "hitting the floor" to get himself to feel on solid ground, and he is most likely crying b/c he basically feels like he is on a tilt a whirl most of the time. Hoss does need SMO braces for his feet (they are molded plastic that instert into his shoe and rise up above his ankles to stabilize his ankles and "force" him to stand properly, instead of pushing so hard into the ground with his feet to get a sense of where he is that his ankles are bending almost into the floor and his knees are turning inward). Hoss is definitely not going to like the braces, and I dread going through that transition with him- but the OT and PT made a strong case for his need for them and it sounds like a fight we need to take on.

In other news (and this is big news), Hoss and Little Joe's mom voluntarily relinquished her parental rights last thursday. [ if you were wondering how I finally was able to get their haircut, here is your answer!] She has 21 days to "retract", but she has to prove she has a good, and verifiable,reason: such as she was coerced or bribed. Simply saying "I changed my mind" will not do it.

Everyone involved in the case is very surprised that she stepped up and signed the papers. Recall that she has repeatedly "threatened" to do this in the past but never actually had gone through with it. I am not her biggest fan, but I am proud of her for making this move. I also recognize that is is an incredibly difficult thing to do- I cannot imagine how it must feel to make such a decision. I can only guess why she did it: to avoid the trial? to avoid the inevitable outcome of the trial? To 'do the right thing' for the boys, so that they can have a more stable life? Did she finally recognize that their needs were greater than the resources (familial, psychological, financial, cognitive) available to her to meet those needs? Perhaps she has wanted to do this all along,but didn't want the stigma associated with 'giving her kids away?" I really do not know, nor will I ever really know. It is a very sad situation, and, while we are relieved that the boys will not be going back into that home situation,we are also sad that the boys, and their mom, have come to this awful destination.

Mom will have a final good bye visit of one hour. It has not been scheduled yet, but will most likely take place in the next week or so. It is her right to have this visit, and I completely understand why this right exists, but I do dread it terribly. The boys are not going to understand what is happening and are going to be upset that everyone else is so upset. Mom is going to be highly dramatic and emotional- that is her nature and her pattern, apart from the fact that it is, by nature a high drama event. I think we are going to have two very confused, scared, little boys on our hands that day.

Mom did ask the social worker to have us take Little Joe to Walmart to get his picture taken so she can have pictures of him (he turns two in October) to remember him by. The social worker pointed out that she can't require us to do that, but I told the SW I was willing to do that if I could get it scheduled and done in time for the goodbye visit.

It does bother me that she did not ask for any photos to be taken of Hoss. It does not suprise me, given what I know about her clear preference for Little Joe and her almost complete dimissal/ dislike of Hoss, but it does bother me.

In completely unrelated news- but relevant to the original intent of the blog- referrals from Vietnam are so blankety blank slow right now that I fear Hoss and Little Joe will be entering puberty before we even get a call to get our paperwork ready. R and I are having a lot of conversations right now about what to do about the boys and about our vietnam adoption and have pretty much made our decision, but need to explore a few things first. I will let you all know once I know for sure what we are going to do!

Well, I have laundry to get folded and a few other boring household chores to attend to before I run to pick up the Bubbas from their first day in daycare: I will blog again on Thursday!

10 comments:

Anonymous said...

Kelly, Wow! Lot's of news on your end. You know you left us hanging there at the end with the whole "lots of conversations about what to do . . . have pretty much made our decision . . ." stuff. Can not wait to hear. I'm sure the good bye visit will be so tough on everyone, and it is so sad that the boys have to be in this situation, but it sounds like you have been so good for them and, in the long run, they will be much better off with things ending up the way they are. Congratu-freak-a-lations on the haircuts, anyway.

Anonymous said...

I am just so, so impressed with all the progress you have made with those boys. Don't feel bad about the need for a daycare break. It will keep you sane and they need a sane foster mom! :-) I'm glad their mom has decided to do what is best for them. I can't imagine how hard that goodbye visit will be, but it will be good for the boys to have the closure, even if they don't understand it right now.

Kathryn said...

Wow lots of news! You really seem to be great for the boys and there has been lots of good progress. I can't wait to hear your decision. I hope the referrals pick up soon; although it's been slow, at least it's been steady, one or two a week. I would like to see more though, since at the pace they are at now it'll be close to a year more, but who knows what will happen in the future.

Anonymous said...

What? You aren't super impossibly perfect? Juggling these two boys needs with a job at home at the same time?! C'mon woman! hahah. Give yourself a break, of course you need and deserve a break and it will be good for them (an opinion I don't generally have, by the way, but definitely believe in their case!!!). Glad for the haircuts and the termination, sad for the goodbye visits and the horrible biased against one child. Good riddance :-( And again I don't say that lightly.

Can't wait to hear your news, whatever it is! Thanks for the updates, I love following your story. You are inspiring me to consider fostering down the line!

Rebecca said...

Hi
I have been reading your blog for the last few months, and I love it! We are in the same boat as you (also in Michigan,but lower Michigan). We started a VN adoption, but then received sisters trough foster care. The sisters are also going up for adoption and we have to make the same choice. I know that when you finally make that choice you will have great joy and excitement about it--no matter what it is! God bless!!

LawMommy said...

About daycare - do not feel bad about this!! Both of my kids really BENEFITTED from their (NAEYC accreditted) daycare center. Lana's language has progressed amazingly from her immersion with like-aged English speaking children, and she at the University, so, there are two other children in her class who are non-native English speakers. I really cannot say enough about how beneficial daycare has been for her, and I just want you to know that, done right, it can be such a positive experience and you shouldn't feel guilt about it. Just my two cents, hope it doesn't sound snotty!!

Anonymous said...

You have a great handle on this.
Best wishes

KelleyO said...

Wow girl you are doing such an amazing job! I love how well the boys are doing. Be prepared for a couple of hard days after the good bye visit. How heartbreaking about her favoring one son over the other.I know you are busy but I miss you. Isn't amazing where life leads us? Enjoy you little breaks while the boys are at daycare.

Dianna said...

So glad to hear that things are developing into a 'normal' for you. The boys sound like they're doing great. It's amazing what some love and attention can do for children. And no nasty daycare comments from me! Love and attention can come from other sources - it doesn't always have to be you. And a sanity break is good for all of you. Best wishes for the tough things coming up and keep blogging - I love to hear about your progress. Keep being strong for those brave little boys!

Melanie said...

Having worked in daycare for years, know there are some terrific programs out there that give the children more opportunities for socialization, art, dress-up, curriculum, etc, than you might ever do. I have had many parents so glad to have some time to accomplish the mundane knowing thier little ones were safe, learning and having blast. You have to keep your sanity (especially with so much going on). You sound as though you are doing your best and then some. I never thought is was possible to give more than 100% in life, but with your determination I am able to see that giving 110% is completely possible for one person. Hang in there and thanks for inspiring/educating/guiding me.